Living with PKU

Continuing with the Family Life series, I came across a story about PKU.  In Raising Baby Caroline: Life With PKU, by Michelle Forman, we see life from the perspective of the parents of a child diagnosed with PKU.  Although a harsh pill to swallow at first, newborn screening certainly played an important role, as acknowledged by the parents.  It is also important to note the close relationship between the family and the various providers, from Pediatrician to Dietitian, in providing maximum potential for both mental and physical growth.  My only question is, as noted in the story, why are state laws so lax on requiring insurance to provide necessary supplies for the continued well being of these individuals?